Parent-Teacher Conference and Kevin

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Last night we met with Z’s preschool teacher. The first thing she asked when she saw us was, “Who’s Kevin?”

Well, Kevin could be a couple of things:

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or

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Z’s teacher said that Z often says, “Come on, Kevin” during class. Which sounds totally not out of the ordinary to us. We know who Kevin is (or could be), why doesn’t everyone?

We then talked about Z’s placement for kindergarten. The teacher said that she, the speech pathologist, and occupational therapist agree that Z is on the cusp of going either to a special class or an autism kindergarten class.

We forgot to ask what the difference is.

But her teacher said that Z catches onto academic stuff like reading and colors and shapes and math really quickly. In other areas Z is working on a few skills, and she still has social delays. She’s fine working or playing alongside a teacher or aide, but when another child/peer joins the group, Z leaves.

Y’all, sometimes I’m like that. But I don’t want to be the reason Z can’t interact with people. So we asked what we could do to improve her social skills. And we decided to try scheduling regular playdates with kids her age, just like we tried last year.

Sometimes I ask myself, “What’s kindergarten?” I don’t see a totally regular class full of typical kids–what I and Reilly grew up with. That’s not the normal around here. What I do see is the possibility of the bird from Up or one of the Minions. Both are equally great: Fun, goofy, smart (maybe not so much the Minion); generally happy and unassumingly generous with cheer. That’s our normal. I’m grateful to have accepted and live it every day.

That’s our girl.

 

Kindergarten Planning and Placement

Z turns 5 in the next couple of months. She’s been going to preschool since she was 3. In the fall she’ll start kindergarten.

KINDER-freaking-GARTEN.

A few weeks ago Z’s preschool teacher notified us of an informational transition-to-kindergarten meeting being held on January 24. We were able to go. It was only an hour long, but the presenter, Linda Chadburn, gave a lot of information. She was clear and easy to understand–she’s been in special education for over 25 years. I could sense a lot of the other parents were also trying to process all the information she presented.

We learned about Least Restrictive Environments, where by law children are placed with other children most like them. The presenter showed us an inverted pyramid with different levels of restrictive environments:

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From Linda Chadburn’s slide presentation

That’s a lot of levels.

Reilly and I have been talking, and we have an idea of where our little Z should go.

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From Linda Chadburn’s slide presentation

Z is currently in a special autism preschool. She goes Monday through Friday, for four hours each day. We feel she would most easily transition into an autism kindergarten. We just have to meet with Z’s preschool teacher and IEP team to see what they recommend.

This makes me so nervous.

The thing about the combined general education and special education classes is that the teacher/aide-to-student ratio is much larger, which means less individual attention. Her safety is one of our biggest concerns. Everything that you can imagine being an issue IS an issue, a definite possibility. Things you otherwise would have taken for granted. We don’t take anything for granted. That’s our world, and frankly, we’re ultimately better off for it.

But, we know Z is very smart. And her speech is really coming along. And if it and her comprehension have developed enough by the time her kindergarten placement is due, maybe we’ll be able to teach her about safety rules?

We’ll approach this milestone of kindergarten the way we’ve approached everything about Z’s development: one day at a time; one moment at a time. Learning as much as we can along the way.

That little girl. Getting to be quite the big girl, now. We love her.

Tuning Out to Tune In

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There is enough noise in the world already.

From 2003 to 2009, I lived in New York City with 8 million people. Lights, traffic, construction, music, strangers everywhere. All the time.

Surprisingly it was easy to get lost and become invisible in that environment. It was easy not to be seen. It was easy to turn the noise to static and drown out my surroundings. If I wanted to be seen or heard, I could emerge from the sensory sludge, reach out to friends, go see some live music and chat up a stranger, go to church and smile at familiar faces.

The beginning of my time in NYC social media had just started getting its footing. I’d started blogging there. I jumped on the Twitter and Facebook bandwagons. In addition to the maelstrom in the streets, I felt the outside world invading my home. It would be a sea we’d all be learning to navigate.

For some reason tuning out the internet influences wasn’t as easy. They were ever present; so easy just to wake up the computer and find myself staring at the screen hours later. Sometimes I was justifiably enthralled, but other times I truly wasted time cramming my noggin with nonsense and noise. It was easy to get lost, but sometimes more difficult to emerge from that dimension to interact with actual humans for quality time. Solid connections. Real relationships.

And now, when I’m in a much slower-paced part of the world, in a pretty chill area of Utah–we live next to horses and sheep, for crying out loud–the internet manages to pound on my brain. What news? What gossip? What music? What bad information? MUST CONSUME ALL OF IT.

Except I mustn’t do anything, but moderate and be conscious of which influences enter my home. Which is especially important to the very impressionable mind under the stewardship of me and Reilly. That little girl absorbs everything. And while she can’t convey all that she consumes, it’s there, just percolating, waiting to manifest in who knows what way.

How do I do this? And how do we do this as a family? A few actions that work for us:

  • I always manage to find some time during the day for absolute quiet, where I can have time to sort my thoughts. Or just take a few deep breaths. For Z, it’s nice to not have a lot of stimuli around for a few minutes and just let her talk. Sometimes the best we can do is the car ride home from daycare. I’ll turn down the radio and ask a few basic questions, and let her think without expecting an answer. What did you do at school? Did you play with the teacher?
  • A huge one for me lately has been physical activity. Exercise clears my mind, and those endorphins make me feel great. We try to encourage physical activity with Z as much as we can. When winter limits our options, we take her to different play areas at different malls, or even fast food places. Give that girl a slide and some space to run, and she’s happy as a clam.
  • Finally, there’s bedtime. This ritual usually ends with us snuggling, watching the night light, and Z talking to herself, and me singing a few nursery rhymes. Her voice is the furthest thing from noise to my soul (except at other times of the day when it’s screaming or whining, then I want to pull all of my hair out SERIOUSLY), and sometimes I’m lucky enough to listen to her happy jabbering fade into deep, sleepy breaths.

There are things that a lot of parents also do: enable actual internet filters, set timers on screen time, help count to 10 during a meltdown/tantrum. Those are definitely helpful, and kudos to all parents doing what works for them. I do other things on my own, as well: Find time to read, limit time on the internet; limit news consumption. It’s nice to find moments to breathe, to appreciate beauty in its many forms, to be able to separate the noise from the music. These moments help me to focus even more on what’s important, to tune in to clearer frequencies.

2018 to 2019

As I type this, I take a deep breath and try to shrug off exhaustion. Reviewing the year in the middle of winter should be a rejuvenating exercise, but at this moment all I really want to do is sleep. And it’s not like I haven’t gotten enough sleep. I’m on vacation, and I’ve gotten 7-8 hours of sleep every night for the past week. I blame winter.

But I want to look back at this year. It’s been a great one. And in some ways, it has also been really hard. And weird and surreal.

And I want to look forward. And upward.

In 2019, I will continue seeking for opportunities to show kindness. I mean, I’m also going to be sassy, but kindness should drive my interactions with others. With family. With strangers and friends, until they feel like family.

In a similar vein, this upcoming year I will work on letting go of things that don’t matter that much. I used to be really bothered when people don’t text back or say they want to hang out but don’t follow through, but I need to be better at realizing that things come up, that people’s lives don’t revolve around my life. Ideally, it would be great if I could hold people to their word all the time, but I fall short at this as well.

I need to create better personal interactions. I need to get to know people and improve empathy. Regular contact with friends and checking in on their lives should help me with this.

Deeper communication. Stronger connections.

Be a better wife, mom, daughter.

As usual, I’d like to read more. (See improving empathy above.) And write a little bit more. I caught up somewhat on blogging this past year, but it would be nice be get into a routine. Monthly, maybe.

Keep working on self-care: Fitness, health, sleep. Calmness, relaxation. Self-forgiveness. Balance. Which probably means dialing down social media, which hopefully means more quality time in person, with actual people.

Keep on encouraging our little girl to continue learning. She’s growing all on her own. And too fast.

What are some of the things you’re striving to improve?

Here are some photos from the past year.

 

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Have a wonderful 2019. I look forward to more depth and meaning in life. I look forward to moments of being less tired. I hope to see more of all of you along the way.

Not ‘Just’

To those who talk about the number of other people’s children or grandchildren with the word just or only in front of that number: don’t do that. Perhaps without meaning to, you’re inferiorizing them. They’re not below people who have more kids. And the folks with no kids (“no, it’s just us”) are no worse than those with children. Nobody’s worth or value is not tied to the number of children or grandchildren they have. Or don’t have.

[I’m aware of the single people who struggle and say, “It’s just me (for now).” I hear you, and I believe you when you tell me about your experiences listening to how people talk of marriage. You have my support, and I promise I’m not ignoring you; this post focuses on my annoyance with conversations revolving around how many children people have.]

I’ve always flinched a little when people flaunt the high numbers of their progeny. Yes, the numbers are impressive, and it must be something to be surrounded by all that youthful energy and innocence. There probably is a bond within really big families I admit I don’t understand. And honestly, I celebrate your happiness; I rejoice in your joy. But then the conversation turns, and then you’re saying to me, “Oh, just one?” or about someone else, “They have only two grandkids.” Without outright saying it, the subtext to these statements is, “How sad for them.”

And it might be they are having a sad experience, but the context of our conversation compares the number of your kids/grandkids to the number of my kids/others’ grandkids, and that actual difference in those numbers defines sadness to you. That single aspect convinces me that you do not feel empathy, but pity.

We do not need your pity.

Pity allows you to go right back to bragging about how blessed your life is, implying how much more blessed you are, because you have more children/grandchildren. Pity helps you dismiss our situation with platitudes: “Oh, you’ll have more someday.” “You deserve more children!” “Trust in the Lord’s timeline.” And other similar, general statements.

Perhaps well-intended, but really not helpful. Actually judgmental, and dismissive of individual situations. Ultimately hurtful to people like me who may not have toughened up to this kind of talk. As challenging as it is to give birth, it can be just as challenging to conceive. Or to find a good way to adopt or foster. Or stand by a decision not to have children. Any of these, without feeling guilt or shame.

On the other hand, I have had good experiences where people have used sensitive language, specifically at the doctor’s office. It’s possible to use better words, and it really does make a difference to me in how relationships form. The effort tells me you understand the value of my child.

Then again, maybe I’m too sensitive. Maybe I’ve put too many eggshells around me. Maybe I should learn to brush it off and be ok that people aren’t always going to understand my situation. But I want to be sure that my child understands she’s more than just one child, more than an only child.

Her understanding has to be a priority, so please disregard all the whining I did above.

Instead of complaining, feeling offended, and doing nothing, perhaps I can be a turning point to a heightened perspective in our culture/society, the presence my daughter needs me to be. For her. To help her understand her worth. To know she doesn’t have to listen to comparisons of others to her.

What I need to do more: When people ask how many children we have, or if we have children, I answer, “We have a daughter.” And if they say, “Just one?” I say, “Not ‘just.’ She’s really great.” She needs to hear that.

And I smile.

She needs to see that.

To feel it.

To know deep in her soul how much we love her.

Four Zinger Years

This post was written 10 April 2018, but I’m backdating it to Z’s birthday, 8 April.

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April is Autism Awareness Month

Dear Z,

Almost three months ago, you and I got sick with fevers, headaches, and congestion. You and I went to the doctor to see if we had the flu. The doctor sent us somewhere else to get a nasal swab to determine the flu. I’m not sure why he or any of the nurses in the office couldn’t swab us. I still might be a little bitter about it.

The doctor’s office wasn’t entirely clear on where we were supposed to get the swabs: do we get them at the hospital, or at one of the affiliated clinics near the hospital? I should have asked for clarification; part of our long day was that I should have gotten better directions.

We stopped by the hospital first. When we were checking in, the intake lady heard you coughing, handed me a mask, and instructed me to put it on your face. This wasn’t going to happen. I knew you weren’t going to keep the mask on. You sat on the floor, keeping mostly quiet, being very good for a sick 3-year-old.

The intake lady heard you cough again, and she reminded me to put the mask on your face. I didn’t do it, because that was a battle I chose not to fight: I’d rather you quiet than struggle to keep a mask on your face. She double checked our insurance and told us a flu swab wasn’t covered. I was irritated. My head was throbbing. I remember half-heartedly asking about the insurance, and the intake lady answered something. I took your hand and quietly walked away.

We eventually found the place where someone would be able to give us the flu test. We ended up both negative. That was a relief, but we’d spent a lot of the day driving around, feeling like absolute junk. I’m so sorry for dragging you all over Orem and Provo that day.

We both tested negative that grey January day, but I can’t stop thinking about my lingering negative attitude about that experience, especially at the hospital. What I wanted was not to have to explain why you wouldn’t wear the mask. What I resented was the assumption that you would wear a mask at all. Maybe the intake lady trusted that moms know the best approach for putting a mask on their children, since no “normal” sick child would cooperate wearing a mask. I didn’t know how to say I was clueless. What I wanted was an acknowledgement–at least from this healthcare institution, in a state that has a higher population of autistic children–or some sort of effort to accommodate, a simple “if your child has sensory issues, then [here’s an alternative].” That can’t be too much to expect at a hospital that probably sees hundreds of children every day.

But guess what? I figured it out. When we were at another waiting room, the receptionist asked me to take masks for both me and you. You started coughing, and I held a mask up to your mouth. Every time you coughed, I covered your mouth with the mask, and you were actually ok with it. I was so grateful for this!

 

Dadda and I have been your parents for four years now, and we’re still figuring it out. I’m still learning patience, but I’ve appreciated the process of learning to see the world through your eyes. I love how you’re never in a rush. How you give in to adult-perceived distractions, when you’re just enjoying your surroundings. How you run your hands over all surfaces. How sometimes you exercise your curiosity by sticking your tongue on things (which often grosses me out). How you run and laugh and sing–and spin, of course. How you verbalize your feelings even though you don’t have as many words as you’d like.

You’re working on getting more words, though. More skills, more coordination. More understanding. A greater attention span and focus. You’ve developed a liking for coloring and puzzles. You can sit with these activities for at least an hour sometimes. Your teachers have been so impressed with you over the past year. When you began preschool, you weren’t able to sit still, and you had no words. Now look what you can do!

We’ve taught you to repeat simple phrases like, “I’m cool” and “I’m smart”; Lola has taught you, “I’m beautiful,” and on your birthday you’ve been able to repeat, “I’m four.” Four. We can’t believe it.

You are adorable, and everyone loves you. Friends and family, definitely. It’s a little weird when strangers smile at you while we’re out or traveling, but most of the time you’re oblivious and could give zero cares. I need to find a way to live more like you.

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It can be so hard being a kid sometimes. So many rules, so many boundaries. It’s been hard for me to reconcile your supposed limitations with your potential. Just thinking of your immense potential makes my heart full. But to you, you don’t have any limitations, other than your parents’ occasional inability to understand what you want or need. Such understanding often requires words. Which you are acquiring more of every single day. Your language–both jabbering and intelligible words–has expanded our minds and blessed our hearts in so many ways, made us better parents. We’re learning as we go. Just like you, we’re figuring it out. We try our hardest to open up the world to you. No limits, baby girl. No more assumptions.

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We have you as our daughter, and you have brought us more than we could ever imagine. More love. More happiness. More life.

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Happy birthday.

Love, Mom

Dumb Valentine’s Day Card: Music Video

Valentine’s Day is a colossally dumb holiday. Like a lot of “holidays,” much of Valentine’s Day’s finds meaning in how much you can spend. Supposedly we’re celebrating love and Cupid and being together. That’s nice. There’s chocolate and flowers and restaurants and jewelry. I like that singles call it “Singles Awareness Day”, and that girlfriends go out for Galentine’s. That’s fun.

This commercially dedicated day is framed in a way to appear the only day in a whole year to declare love. Or make some grand gesture of love. You don’t want to miss your chance. But it does seem to be the only day people will wait in line for hours at a decent (or even crappy) restaurant. New couples may get to see an ugly, dark side of their dates as lines stand still; seasoned couples may wonder why they didn’t stay home and cuddle in front of the television. Hello, it’s the Olympics! What’s more romantic than watching people at their peak athleticism and talking about how we’re so much cuter and stronger and, better yet, way more comfortable in our jammies? We (I) do love Johnny Weir and Tara Lipinski, who may be the best commentators of any event in the history of humankind.

But it’s only coincidence the 2018 Winter Olympics overlap with Valentine’s day. And that the Winter Games only comes around once every four years, and Dumb Valentine’s Day (yes, that’s the name of the entire proper noun) is every year.

It’s possible not to celebrate Dumb Valentine’s Day, to make that very deliberate choice, but this is also dumb. If I’m being completely honest with myself, despite this holiday being overhyped and spendy and chaotic and commercial and exclusionary, I actually quite love it. Mostly because my love loves it. Reilly really gets into giving me flowers and chocolate and a perfectly written card. And we have fun giving Z little chocolates. I enjoy this overt expression of his deep and abiding love. Throughout the year he does so many little things to support me and brighten my day. Like laundry: for me, folding clothes ranks below going to the dentist, but Reilly speeds through washing and folding loads of laundry without a single complaint. That’s pretty hot, and just thinking about it makes me wanna …

Ahem.

I don’t necessarily expect a sweeping flourish for Valentine’s Day, but I certainly relish the moments where he puts forth a greater effort beyond his daily, loving actions.

We’ve learned not to go out on Dumb Valentine’s Day itself. We might go out sometime this week, but tonight, people be crazy, so we’re staying in. Besides, I like the idea of spending a quiet evening with my family, of celebrating our love doing something non-sparkly. That’s plenty special.

I love hanging out with my family. It doesn’t even matter what we’re doing: Driving without having a place to go (sorry, environment!), watching TV, eating, sitting around. We don’t even have to be talking. It’s nice to read in the living room near (it doesn’t even have to be next to!) my honeyman, while Z plays or reads or spins around.

In true, self-contradicting, Dumb Valentine’s Day fashion, to demonstrate my love for my family, I have a somewhat grand gesture of my own. (Insert evil laugh here.)

I have been listening to Lorde’s first album–PURE HEROINE–a lot lately. Something about the second song really catches my ear, and it was on repeat for hours at a time, several days in a row. It’s a cute little song called “400 Lux,” and it’s about young love realizing it’s evolved into something deep and real. The couple in the song don’t have to be going anywhere to feel like they’re doing something together. They don’t feel unpredictable and uncertain anymore; their love is stable.

I love these roads where the houses don’t change

Where we can talk like there’s something to say

I’m glad that we stopped kissing the tar on the highway

We move in the tree streets

I’d like it if you stayed

That’s where I feel we are.

Many of my guilty pleasures are often cheesy and awkward things that sometimes cross over into being uncomfortable. I like Hallmark and Lifetime movies. I like movies about animals getting lost so they talk to each other telepathically and find their way home. I have a feeling that I would really like This Is Us. Anyway, I edited together some footage of our family hanging out with “400 Lux” as the soundtrack. Dirty windows, cracked lenses, the works. The result is a cheesy, awkward, and possibly uncomfortable video that I hope you (try to) enjoy. I love our little dog and our growing daughter and my always-super-hot husband.

My loves: I like you.

Happy Dumb Valentine’s Day.