Halloween Costumes 2018, and Resisting Monsters

I posted this on social media 10/28/2018. It’s long enough to document here.

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We went to a Halloween concert yesterday and as we got out of the car, a lady shouted, “Chucky!” As we entered the building, we got a few “Nice costumes, guys!” from people we passed. And Reilly said I made a toddler dressed as Black Panther cry.

Also, posting our costumes on a Sunday to get us wondering why anyone should live with near-paralyzing fear of getting murdered on their holy days. Or any day for that matter. That is where my heart is right now.

These characters from horror movies evoke the thrill of a good scare that we can turn off, recover from, and then carry on with our lives. Other real-life monsters, like those just from this past week, aren’t as easy to escape. But we can’t let them conquer us with fear. We can’t let their hate overpower us or ambush us through the mail, at the grocery store, or where we find spiritual strength or a sense of community.

We love these costumes, and we are so excited about showing them off. But costumes are all they are. And you know our hearts aren’t filled with revenge like Chucky’s, or incapable of distinguishing between affection and violence as Frankenstein’s monster’s, or deeply primally evil like Black Phillip’s.

We are here for you. On your holy days, and every day.

Happy Sabbath, y’all.

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Four Zinger Years

This post was written 10 April 2018, but I’m backdating it to Z’s birthday, 8 April.

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April is Autism Awareness Month

Dear Z,

Almost three months ago, you and I got sick with fevers, headaches, and congestion. You and I went to the doctor to see if we had the flu. The doctor sent us somewhere else to get a nasal swab to determine the flu. I’m not sure why he or any of the nurses in the office couldn’t swab us. I still might be a little bitter about it.

The doctor’s office wasn’t entirely clear on where we were supposed to get the swabs: do we get them at the hospital, or at one of the affiliated clinics near the hospital? I should have asked for clarification; part of our long day was that I should have gotten better directions.

We stopped by the hospital first. When we were checking in, the intake lady heard you coughing, handed me a mask, and instructed me to put it on your face. This wasn’t going to happen. I knew you weren’t going to keep the mask on. You sat on the floor, keeping mostly quiet, being very good for a sick 3-year-old.

The intake lady heard you cough again, and she reminded me to put the mask on your face. I didn’t do it, because that was a battle I chose not to fight: I’d rather you quiet than struggle to keep a mask on your face. She double checked our insurance and told us a flu swab wasn’t covered. I was irritated. My head was throbbing. I remember half-heartedly asking about the insurance, and the intake lady answered something. I took your hand and quietly walked away.

We eventually found the place where someone would be able to give us the flu test. We ended up both negative. That was a relief, but we’d spent a lot of the day driving around, feeling like absolute junk. I’m so sorry for dragging you all over Orem and Provo that day.

We both tested negative that grey January day, but I can’t stop thinking about my lingering negative attitude about that experience, especially at the hospital. What I wanted was not to have to explain why you wouldn’t wear the mask. What I resented was the assumption that you would wear a mask at all. Maybe the intake lady trusted that moms know the best approach for putting a mask on their children, since no “normal” sick child would cooperate wearing a mask. I didn’t know how to say I was clueless. What I wanted was an acknowledgement–at least from this healthcare institution, in a state that has a higher population of autistic children–or some sort of effort to accommodate, a simple “if your child has sensory issues, then [here’s an alternative].” That can’t be too much to expect at a hospital that probably sees hundreds of children every day.

But guess what? I figured it out. When we were at another waiting room, the receptionist asked me to take masks for both me and you. You started coughing, and I held a mask up to your mouth. Every time you coughed, I covered your mouth with the mask, and you were actually ok with it. I was so grateful for this!

 

Dadda and I have been your parents for four years now, and we’re still figuring it out. I’m still learning patience, but I’ve appreciated the process of learning to see the world through your eyes. I love how you’re never in a rush. How you give in to adult-perceived distractions, when you’re just enjoying your surroundings. How you run your hands over all surfaces. How sometimes you exercise your curiosity by sticking your tongue on things (which often grosses me out). How you run and laugh and sing–and spin, of course. How you verbalize your feelings even though you don’t have as many words as you’d like.

You’re working on getting more words, though. More skills, more coordination. More understanding. A greater attention span and focus. You’ve developed a liking for coloring and puzzles. You can sit with these activities for at least an hour sometimes. Your teachers have been so impressed with you over the past year. When you began preschool, you weren’t able to sit still, and you had no words. Now look what you can do!

We’ve taught you to repeat simple phrases like, “I’m cool” and “I’m smart”; Lola has taught you, “I’m beautiful,” and on your birthday you’ve been able to repeat, “I’m four.” Four. We can’t believe it.

You are adorable, and everyone loves you. Friends and family, definitely. It’s a little weird when strangers smile at you while we’re out or traveling, but most of the time you’re oblivious and could give zero cares. I need to find a way to live more like you.

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It can be so hard being a kid sometimes. So many rules, so many boundaries. It’s been hard for me to reconcile your supposed limitations with your potential. Just thinking of your immense potential makes my heart full. But to you, you don’t have any limitations, other than your parents’ occasional inability to understand what you want or need. Such understanding often requires words. Which you are acquiring more of every single day. Your language–both jabbering and intelligible words–has expanded our minds and blessed our hearts in so many ways, made us better parents. We’re learning as we go. Just like you, we’re figuring it out. We try our hardest to open up the world to you. No limits, baby girl. No more assumptions.

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We have you as our daughter, and you have brought us more than we could ever imagine. More love. More happiness. More life.

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Happy birthday.

Love, Mom

Christmas 2017 – Papi and Lola’s Visit

When our family got home from church last Sunday, Lola and Papi were already waiting inside. The first thing Z did when she saw Lola was take her hand and lead her downstairs to play.

They have been inseparable for the past nine days. I’ve heard them talking to each other every day: Mom’s gentle voice and Z’s cute jabbering or imitating. These are happy sounds.

There’s this game where Z waits at the top of her slide while Lola counts to five, and then says, “Go!” And then Z goes down the slide.

There have been multiple viewings of Trolls and Moana and Brave and Shrek, but mostly Trolls. That’s what Z has been into lately.

The entire time we walked around Temple Square to see the lights, Z—in a stroller—looked behind her to make sure Lola was close by.

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Lola has experienced telling Z to stop climbing the kitchen cabinets to get a sucker. She and Papi have taken part of our tradition of Saturday donuts.

If you believe in love languages, one of them is acts of service. My mom speaks this language loud and clear. In addition to being Z’s best friend, Mom has cleaned our house, done many loads of laundry, and cooked various meals for us. She’s done many things that have allowed us to relax. Papi has supported her in this visit and has told good stories and perfectly dry jokes. He is a wonderful man.

On Christmas, we had a fun day of opening presents and going out to breakfast and then spending dinner with Reilly’s family in Payson. Having everyone together heightened our spirits and the love we feel for each other.

A few quotes from the past week:

“You need to wax your moustache.” Mom to me, after looking at my upper lip.

“Ok, Papi, all glued.” Mom to Papi, after putting gel in and styling Papi’s hair.

“Do you sell pancakes here? Just checking.” Papi to the IHOP host, while getting seated for a Christmas breakfast.

“There you go!” Something Z picked up from Lola, when Z said something correctly. Z says this quite often now.

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Enjoying some time by Nana and Papa’s tree in Payson
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Enjoying some final tickles before bedtime and a happy goodbye

Right now, Lola is lying with Z until she falls asleep. They are talking and singing together.

Lola and Papi are driving back to Florida in the morning. They plan on sneaking out while Z is still asleep.

There will still be crying, though.

It is the morning, and Lola and Papi have left. Reilly and I woke up to send them off. During Mom’s tear-ridden, heart-bursting prayer, we heard Z talking to herself in bed. We said our goodbyes and hugged each other. Lola and Papi got into their car, and then they drove away.

We got Z out of bed and gave her some breakfast. We’re watching Shrek now, and Z has said “Ya-ya!” several times, asking for Lola, and I’ve had to explain that Lola went bye-bye.

The house is much quieter now, and I’m still a little teary-eyed. Thanks to Papi and Lola for visiting and giving us memories to reflect upon, their voices echoing in our minds, when the silence is too much to bear.

42 Months (in two days)

Dear Beautiful Z,

In the middle of last month you had picture day at preschool. I preordered the package online, not knowing how they’d turn out. All I wanted was to preserve the memory of your very first picture day.

On your very first picture day, your teacher sent home a note. You usually get a daily note of your general behavior – this comes as a golden rod laminated form that your teacher fills out: What you ate, what you played with, any tantrums, or moments in the calm-down corner. But the note your teacher sent home on your first picture day was a pink note. The pink notes are achievement notes, and this is the one from your first picture day:

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This made me excited to see your pictures! I asked Dadda when he thought your pictures would be ready, and he said they usually take two weeks.

The next two weeks the suspense was unbearable. I kept busy and tried thinking about other things to pass the time. But it occurred to me that it was possible your teacher sent home notes like that for all your classmates, and doubt crept into my mind. What if your smile wasn’t really a smile, but a weird smirk? What if it was one of those forced smiles with your eyes squinty or tightly shut? What if you got all muddy or grimy from snack time? I’ve seen bad school pictures. Many of my school pictures were horrible. I definitely lowered my expectations of how your first school pictures turned out.

But the day came when I picked you up from daycare and one of the workers said your school pictures were on the top shelf of your cubby hole, and that they were sooo cute. And we saw another daycare worker who commented likewise about your school pictures. And so you and I went to your cubby hole and I glanced at the photo through the window of the big envelope, and I just about fell to my knees and cried from the cuteness. this is what I saw:

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Everyone loves your school pictures! I love them. Dadda loves them. I’ve shown them to you and asked who the girl in the pictures is, and you’ve answered with your name in that sweet little voice of yours. It’s nice to know that your teacher just wasn’t being nice when she sent home that pink note. She was being sincere, and I’m so glad we have this memory!

Yesterday Dadda and I had parent-teacher conference with your teacher. We talked for a good while about the progress you’re making, and she remarked how much energy you have! She’s impressed with you, and I hope you continue to let your teacher challenge you, and that you’ll eventually learn to harness that energy. We know you’re 3, we know you’re a sensory-seeker, so we definitely understand the spinning and running and climbing everywhere.

While we were at your school, we also got to talk with your speech pathologist, who had the chance of talking with your ABA therapist. It sounds like they will be able to coordinate their efforts and methods to bring about the best results for your speech development. How fortunate that we have these resources. We feel so blessed.

And today: Your teacher sent home another pink note!

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We are super proud of you. We love that you’re learning and expressing yourself. We love that communication is starting to click for you. We’re doing our best to help you, and your sweet spirit and desire to learn keep us from feeling too overwhelmed. We are here for you, and we will support you always.

Love, mom

Preschool – First Day

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Look at that photo. She looks so depressingly grown up. She does look pretty confident, though, which I love. Like she’s saying, don’t mess with me, mofos. I’ve been so nervous about today, Z’s first day of preschool. She had no idea what was going on. Reilly and I told her that she was going to a new school, and that she would ride a bus, and that she would have fun teachers. I made her try on her backpack several times yesterday so that it would be familiar to her and she would think it’s hers. Both Reilly and I like this backpack, but I don’t think Z cares very much right now.

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The day dragged on, and Z getting up at 6:30 didn’t help. We had breakfast and played and watched a few music videos. We hung out and cuddled and sang songs together. I reminded our little girl that she was going to school today, but I doubt she understood. She probably understands now that she’s there.

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It’s so weird thinking of our 3-year-old riding a bus. I mean, that’s what big kids do. Yesterday I emailed her teacher asking if an adult would sit with her on the bus to school. I totally stressed out about it. I know that if someone’s not sitting beside her, she would want to get up and wander around. But the teacher reassured me an aide would help Z with the whole bus experience. The teacher also said that everyone would make Z’s transition to the school as smooth as possible.

That helped me feel a little better, but just a little.

Grandma sent a text saying to give her a big hug and tell her she’s going to do fantastic. And that’s what I did.

Though the day seemed to drag, the time for the bus to arrive sneaked up on us. I helped Z put on her shoes, and we walked out to the curb. I sat on the ground and pulled her to me so she could sit on my lap. I held her tight.

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The bus pulled up to the curb. The door opened, and the aide stepped off. She said hello to Z and handed me a form to complete and explained some stuff. She helped Z onto the bus and guided her to a seat on the same side as our house. I took a picture of the bus, and the aide helped Z wave at me as the bus pulled away. I smiled and waved back.

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I went back into the house and cried. I’m still sort of crying.

She’ll be home soon, though. I hope she did okay.

Three Zinger Years

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Dear Zinger,

Happy third birthday, my love! I’ve spent the past few weeks thinking of what to write you for your birthday. I thought I could plan something elaborate and fun and recap the last year of your life with a flourish, because your third birthday is a really big deal. The planning didn’t go so well, but I’ll still reminisce this past year with you. You have grown so much, and the world anticipates all the new things you have yet to discover.

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Dadda and I worry about you all the time. We’ll keep worrying about you as the world continues to open up to you. That’s what parents do. We wonder how you’ll play with other kids, communicate your wants and needs. You do express yourself well; all it takes is one look at your irresistible face, and we can tell what you’re feeling.

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You want to be independent so badly. You’ll climb the countertops to get what you want. If you need help with it, you’ll bring it to us, at which time we realize you’ve climbed the countertop, which is a big no-no. But you’re stubborn and persistent. These characteristics will ultimately prove valuable to you in this world, if you use them the right way.

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Lola and Poppy are in town to celebrate your birthday, and you’re so eager to show them how much you know. Just last night you led Lola to the bathroom, where you brought the iPad, then brought the stool to the toilet, put your potty seat on the toilet and had Lola help you with your pants. You then sat on the toilet and went potty. Lola was so very impressed.

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Only recently have you started opening the refrigerator to retrieve one of your favorite foods, yogurt. You’re getting stronger and more resourceful, and if there’s a way to do something without our help, you’ll figure it out.

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A few months ago, we bought a house with a back yard and lots of space to play. You seem to enjoy it. You’ve found your little niches where you love to play, but it seems that you can fall asleep anywhere, which is so convenient.

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For some reason, you’ve gotten a lot more energetic as you’ve gotten closer to 3. You run, skip, jump, and dance so much more. Jumping on the couch, jumping on the bed. Running from one room to another. Going down your slide while watching one of your favorite movies. Climbing the fence, throwing rocks. Spinning and spinning wherever you are. You’ve also gotten a lot more curious in your old age, and it’s so much harder to keep up with you.

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You’re also putting a lot more stuff in your mouth that isn’t supposed to go there. Just the other day I barely saw you eat a giant booger before I could do anything about it. It really grossed me out, and we need to do better at catching you eating prohibited things. We actually need to be better at teaching you not to eat those things. Ah, parenting. Thanks so much for your patience, little one.

 

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We love how you’re participating more at school (daycare). We love how excited you get when you want to show us something. We love how often you sing and how you recognize the songs we sing to you. We love that you like watching music videos, how Beyonce’s “Single Ladies” and ‘NSync’s “Bye, Bye, Bye” are among your top favorites lately.

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So much is happening in the world. So much legitimately weird stuff. You’re oblivious to most of it, but we do want to teach you how to navigate all the weirdness in a constructive way. We want to teach you how to give beauty and goodness to the world. I know you’re only three, but you’re actually already three. You’re growing too fast. I would like to stop time just for a little bit, just for today, to really sit back and enjoy remembering the past three years with you.

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We’re having a party for you today: balloons, yummy food, family and friends. Toys and clothes and everyone cherishing your life. We hope you like it. Thank you for bringing us so much joy, for teaching us, for making us love more deeply and way beyond what we originally thought our abilities were.

This next year will be very exciting, and we cannot wait to live it with you.

Happy birthday.

Love, mom

Two Zinger Years

Good morning of 2nd birthday!
Good morning of 2nd birthday!

Winter is finally starting to retreat, and the warm weather calls to you every day. When you lead us to the door to go outside, we are excited to help you put your clothes on and let you roam the great outdoors. Two years ago, you were a little too comfy in Mama’s tummy, and we coaxed you so to join us in this wonderful and crazy world.

Two years later you’re taking it all in.

Last week we were watching The Good Dinosaur, and one particularly sad part made me cry. You came up to me leaned your forehead toward me. You do this when we want you to give us kisses. We say, “Can I have kisses?” and make a kissy face. But I didn’t do this last week. I was crying quietly and wiping away my tears because the dinosaur was saying goodbye to the human. When you gave me kisses with your forehead, it was hard not to cry even harder.

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In the past year while watching movies, you often laughed at sad parts, but now you also get sad, and you scream when the little girl Merida screams. You are developing a sensibility about other people. You are developing empathy.

At the same time, you don’t like being around a lot of people. You’re still unsure of other little kids. You recognize them; you acknowledge their existence, but you’d rather not interact with them. You appreciate the safe place of family and familiar friends. I’m grateful you cherish this, and I hope you continue to do so for as long as you can, because there will be moments when the world seems a little scary, and we won’t be able to hold your hand or pick you up and hold you. We want to teach you how to handle those moments well. We’ll still be there, just not in the same ways we are now. This makes me profoundly sad.

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But I am so exquisitely happy that it’s your birthday. It’s hard to believe two years have already passed, because I was just reminiscing about my constant need to pee, which seems was only yesterday. (Which it wasn’t.) You’re saying a few words here and there. You’re getting stronger and faster. More curious. More mischievous.

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You love light switches and doorknobs. And bubbles. Climbing to higher heights. Sprinting between rooms. Squealing during sacrament meeting. Reading your books. Singing your favorite songs; chilling out on the floor for a few moments before another burst of pure energy. Basking in the sunshine. Giving Mama and Dadda hugs and kisses. And mastering potty-training all the while.

We couldn’t be prouder. Or happier.

This crazy world sure needs more people like you.

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You are a joy and a blessing, dear daughter. Wonderful Z.

Happy birthday.

Love, Mom