Smoke and Reflection

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On my way to work this morning I came upon this view. Smoke from neighboring states’ wildfires has drifted into our mountain range and somewhat obscures the view. This haze has lingered for days, or has it been weeks? It reminds me of a roadtrip I took through the Great Smoky Mountains, where fog cloaked the peaks, not smoke. The mist was beautiful and mysterious but also inspired meditation. As the day warmed the fog eventually lifted. Here, the smoke continues to cling—a sticky, choking cloud. These Uintas should trade names with the range back East, because of all the literal smoke.

People talk of rising above the haze, finding clarity, a better view. People find a way to ascend—hike, horse, plane—or they hope for this veil to lift.

To see. To see, and to breathe.

The path isn’t clear all the time. The religious rely on their faith to nurture what they cannot see into knowledge; the spiritual also have a form of faith that guides them. The rest of humankind also believes in the goodness of others and desires improvement in themselves, but without any post-life motivation or incentive.

This is overly simplified: there are more than these three groups of people in the world, and there are definitely overlaps between these groups. Lives and attitudes and philosophies are so different. I accept this.

How do I assess the meaning in my life? What is my why?

Do I contemplate my purpose because of the smoke, or because of what the smoke obscures? Because I know the mountains are there, does this sustain my hope for better things? Does this motivate me to rise above the current smog?

What if I didn’t know what was hiding in the smoke, would my plan of action be to wait until it clears?

Sometimes I wonder if I’m being faithful, or just naïve.

Mother’s Day 2018 Thoughts

What is Mother’s Day to these groups? I may have missed some categories, but in general this is what I have observed:

  • Married women with children
  • Single women with children
  • Women with special needs children
  • Single women without children
  • Married women without children
  • Women who have lost children through tragedy: war, accident, illness, other circumstances
  • Women who have lost mothers
  • Women who don’t want children
  • Women who can’t have children but want them

Looking at this list, I know what it’s like to:

  • be married with a child
  • have a (relatively high functioning) special needs child
  • want another child but unable to have one (yet)
  • be single until the age of 36 until marriage stabilized my life enough to have children

This is my life experience so far, and I admit my empathy is limited to women who fit into these categories. Some fit neatly, for some the lines are blurred. I do my best to understand that, too.

I know women who:

  • are single with children
  • are single without children
  • have special needs children across a very broad spectrum
  • have lost children through tragedy
  • have lost mothers
  • don’t want children
  • can’t have children but want them

Every Mother’s Day I think about these women. What are their struggles? How do they cope? Is this holiday something they even care about, or is it just another day? It seems the world praises mothers as women who have children, but I’ve always felt strongly that to be a mother you do not have to have children. I’ve always cringed at that part of that (cultural/societal) definition of motherhood; I’ve always felt to side with those who may fall in the shadows of the child bearers.

Not that child bearers shouldn’t be standing tall, because they totally should. Raising children is never easy, and devoted moms everywhere should be extremely proud of their hard work. My mom is wonderful. She sacrificed and taught and nurtured and scolded and guided me to learn really important lessons about life. I will always be grateful for everything she’s done and is doing for me.

I know many wonderful women who qualify as “super moms,” because they’re doing it all. They overcome all obstacles; they push aside excuses. They bend the universe around their will. These women have determination and passion, and I know they have their own trials and internal conflicts, but to me they are unstoppable. I admire them, because I know they also have to be super tired all the time.

But you guys. YOU. GUYS. I probably know even more women who deeply suffer when Mother’s Day comes around. It seems they feel a lot of traditional moms look down on them. They feel inferior, less than; their divinities/self-worths don’t measure up because of their different life experiences. Feeling this way, year after year — or even every day for some — is really hard.

If we don’t dedicate this day only to women with children, are we dismissing them? Is this their one day to feel better than the women without children? To say, “I’m so much more like Christ now because I have children”? Is motherhood the only thing that matters to our (eternal) happiness?

Wouldn’t the womanly and motherly thing to do is to include and love women for their differences and experiences, no matter what they are?

Every ten years or so a good thought graces my soul, and four years ago on Mother’s Day I posted this on Facebook, and it still holds up:

As women are all descended from Eve, we all should remember our nobility as Mothers of All Living. Our stewardship, however we currently define it in our lives, is divine.

Happy Mother’s Day.

To my glorious mom, happy Mother’s Day. To all mamas everywhere, happy Mother’s Day. But especially to my dear women friends who face pain, loss, and sadness, and live with heartbreak: at the very least, you have nurtured and guided me and helped me heal in profound ways. If that isn’t being a mother, I don’t know what is. Happy Mother’s Day to you.

Four Zinger Years

This post was written 10 April 2018, but I’m backdating it to Z’s birthday, 8 April.

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April is Autism Awareness Month

Dear Z,

Almost three months ago, you and I got sick with fevers, headaches, and congestion. You and I went to the doctor to see if we had the flu. The doctor sent us somewhere else to get a nasal swab to determine the flu. I’m not sure why he or any of the nurses in the office couldn’t swab us. I still might be a little bitter about it.

The doctor’s office wasn’t entirely clear on where we were supposed to get the swabs: do we get them at the hospital, or at one of the affiliated clinics near the hospital? I should have asked for clarification; part of our long day was that I should have gotten better directions.

We stopped by the hospital first. When we were checking in, the intake lady heard you coughing, handed me a mask, and instructed me to put it on your face. This wasn’t going to happen. I knew you weren’t going to keep the mask on. You sat on the floor, keeping mostly quiet, being very good for a sick 3-year-old.

The intake lady heard you cough again, and she reminded me to put the mask on your face. I didn’t do it, because that was a battle I chose not to fight: I’d rather you quiet than struggle to keep a mask on your face. She double checked our insurance and told us a flu swab wasn’t covered. I was irritated. My head was throbbing. I remember half-heartedly asking about the insurance, and the intake lady answered something. I took your hand and quietly walked away.

We eventually found the place where someone would be able to give us the flu test. We ended up both negative. That was a relief, but we’d spent a lot of the day driving around, feeling like absolute junk. I’m so sorry for dragging you all over Orem and Provo that day.

We both tested negative that grey January day, but I can’t stop thinking about my lingering negative attitude about that experience, especially at the hospital. What I wanted was not to have to explain why you wouldn’t wear the mask. What I resented was the assumption that you would wear a mask at all. Maybe the intake lady trusted that moms know the best approach for putting a mask on their children, since no “normal” sick child would cooperate wearing a mask. I didn’t know how to say I was clueless. What I wanted was an acknowledgement–at least from this healthcare institution, in a state that has a higher population of autistic children–or some sort of effort to accommodate, a simple “if your child has sensory issues, then [here’s an alternative].” That can’t be too much to expect at a hospital that probably sees hundreds of children every day.

But guess what? I figured it out. When we were at another waiting room, the receptionist asked me to take masks for both me and you. You started coughing, and I held a mask up to your mouth. Every time you coughed, I covered your mouth with the mask, and you were actually ok with it. I was so grateful for this!

 

Dadda and I have been your parents for four years now, and we’re still figuring it out. I’m still learning patience, but I’ve appreciated the process of learning to see the world through your eyes. I love how you’re never in a rush. How you give in to adult-perceived distractions, when you’re just enjoying your surroundings. How you run your hands over all surfaces. How sometimes you exercise your curiosity by sticking your tongue on things (which often grosses me out). How you run and laugh and sing–and spin, of course. How you verbalize your feelings even though you don’t have as many words as you’d like.

You’re working on getting more words, though. More skills, more coordination. More understanding. A greater attention span and focus. You’ve developed a liking for coloring and puzzles. You can sit with these activities for at least an hour sometimes. Your teachers have been so impressed with you over the past year. When you began preschool, you weren’t able to sit still, and you had no words. Now look what you can do!

We’ve taught you to repeat simple phrases like, “I’m cool” and “I’m smart”; Lola has taught you, “I’m beautiful,” and on your birthday you’ve been able to repeat, “I’m four.” Four. We can’t believe it.

You are adorable, and everyone loves you. Friends and family, definitely. It’s a little weird when strangers smile at you while we’re out or traveling, but most of the time you’re oblivious and could give zero cares. I need to find a way to live more like you.

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It can be so hard being a kid sometimes. So many rules, so many boundaries. It’s been hard for me to reconcile your supposed limitations with your potential. Just thinking of your immense potential makes my heart full. But to you, you don’t have any limitations, other than your parents’ occasional inability to understand what you want or need. Such understanding often requires words. Which you are acquiring more of every single day. Your language–both jabbering and intelligible words–has expanded our minds and blessed our hearts in so many ways, made us better parents. We’re learning as we go. Just like you, we’re figuring it out. We try our hardest to open up the world to you. No limits, baby girl. No more assumptions.

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We have you as our daughter, and you have brought us more than we could ever imagine. More love. More happiness. More life.

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Happy birthday.

Love, Mom

42 Months (in two days)

Dear Beautiful Z,

In the middle of last month you had picture day at preschool. I preordered the package online, not knowing how they’d turn out. All I wanted was to preserve the memory of your very first picture day.

On your very first picture day, your teacher sent home a note. You usually get a daily note of your general behavior – this comes as a golden rod laminated form that your teacher fills out: What you ate, what you played with, any tantrums, or moments in the calm-down corner. But the note your teacher sent home on your first picture day was a pink note. The pink notes are achievement notes, and this is the one from your first picture day:

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This made me excited to see your pictures! I asked Dadda when he thought your pictures would be ready, and he said they usually take two weeks.

The next two weeks the suspense was unbearable. I kept busy and tried thinking about other things to pass the time. But it occurred to me that it was possible your teacher sent home notes like that for all your classmates, and doubt crept into my mind. What if your smile wasn’t really a smile, but a weird smirk? What if it was one of those forced smiles with your eyes squinty or tightly shut? What if you got all muddy or grimy from snack time? I’ve seen bad school pictures. Many of my school pictures were horrible. I definitely lowered my expectations of how your first school pictures turned out.

But the day came when I picked you up from daycare and one of the workers said your school pictures were on the top shelf of your cubby hole, and that they were sooo cute. And we saw another daycare worker who commented likewise about your school pictures. And so you and I went to your cubby hole and I glanced at the photo through the window of the big envelope, and I just about fell to my knees and cried from the cuteness. this is what I saw:

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Everyone loves your school pictures! I love them. Dadda loves them. I’ve shown them to you and asked who the girl in the pictures is, and you’ve answered with your name in that sweet little voice of yours. It’s nice to know that your teacher just wasn’t being nice when she sent home that pink note. She was being sincere, and I’m so glad we have this memory!

Yesterday Dadda and I had parent-teacher conference with your teacher. We talked for a good while about the progress you’re making, and she remarked how much energy you have! She’s impressed with you, and I hope you continue to let your teacher challenge you, and that you’ll eventually learn to harness that energy. We know you’re 3, we know you’re a sensory-seeker, so we definitely understand the spinning and running and climbing everywhere.

While we were at your school, we also got to talk with your speech pathologist, who had the chance of talking with your ABA therapist. It sounds like they will be able to coordinate their efforts and methods to bring about the best results for your speech development. How fortunate that we have these resources. We feel so blessed.

And today: Your teacher sent home another pink note!

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We are super proud of you. We love that you’re learning and expressing yourself. We love that communication is starting to click for you. We’re doing our best to help you, and your sweet spirit and desire to learn keep us from feeling too overwhelmed. We are here for you, and we will support you always.

Love, mom

Teacher’s Note

Yesterday was Z’s first day of preschool. It should have been Tuesday, but there was a mixup with the buses. They reversed our home address and the pickup address. I was annoyed, but things got straightened out, and when I picked her up from daycare yesterday, the workers said she’d had a good day, that she was a happy little girl. And had a nice nap. And that she’d gone potty just before I got there. The bus pickup and dropoff had no glitches, and the bus aide told the daycare that Z had a good day at preschool. I was so pleased to hear all of this good news! To top it off, Z was holding a clear plastic cup with some animal crackers. I buckled her in the car.

Then we got home and had about 20 minutes before Z’s ABA session. We sat at the patio table and ate some chips, then Dadda got home. And then Z’s tutor and the tutor’s supervisor came over. The supervisor talked with us about the additional things she’d like to implement in Z’s program and asked us if we had any questions. Reilly mentioned that Z sometimes reverses the sounds of letters in a word, like saying the “K” sound first in the word “drink.”

Then the supervisor brought up apraxia. The way Z tries to say some words may indicate apraxia. None of this is conclusive right now. But it’s another thing I have to research and worry about. I wasn’t told not to worry. I was going to worry anyway, but it makes a difference to be told not to worry.

This afternoon Z’s preschool teacher sent us an email:

Z’s day two has gone great, she really likes snack time, but wanted to walk around with the “juice” (gatorade) that she chose so we put in in her sippy cup and then she was able to drink from it when she was thirsty. She is listening and following directions so much better than when she first started in April which is awesome, especially considering the long summer break.
Just wanted to let you know.
As I was reading, tears streamed down my cheeks, and I’ve yet to really identify the emotions I experienced. Maybe I felt a combination of happiness and relief. But I felt most strongly pride. I can never articulate what all my concerns are for her, especially when it comes to navigating the world and discerning trust in and from others. Her safety, her knowing who she is, her ability to contribute to society. The preschool teacher’s email gave me great hope.
The other day, I tweeted this:

I’m grateful for the tools our biggening girl has acquired in her life so far. We can’t wait to see what else she can do.

Talk in Church

On July 30 2017, Reilly and I spoke in Church. I’ve decided to post my talk here for posterity.  And kicks. You’ll see that I spent the first third of the talk introducing us, since we are relatively new in our ward. I was pretty lighthearted and included some jokey inflections in my voice. Then I got a little more serious and decided to share more of myself, being just vague enough about my imperfections as well as admitting (vaguely) some of my struggles. If I spoke quickly enough, this talk would have been under 10 minutes, but I applied a nice cadence and switched up tempos throughout, so it ended up being closer to 15 minutes. Enjoy. Or not. 

Good morning. I am May Ryan. My handsome, smart, selfless, and sort of muscley and strong husband is Reilly Ryan. Reilly works at Diamond Fork Jr High in Spanish Fork, teaching 8th grade English. I work at a content and publishing company in Sugarhouse, maintaining a cancer diagnosis app. We’ve been married for five years and we have a 3yr old daughter named Z. We have been in the ward for 7.5 months, and we really love it here.

As more of an introduction, Reilly and I met in a Provo singles ward in August 2011. I was walking home from dinner at a friend’s house and happened upon ward prayer in my neighborhood cul-de-sac. I was new in the ward. Earlier that day at church someone had invited me over for a potluck, but I couldn’t remember where it was, and I wanted to check it out, even though I had just eaten.

While I’m not the most social person and I usually didn’t attend ward prayer, I needed to find out where this potluck was, but not because of the food. I was single, and because I was in a new ward, I had resolved to make myself try harder at getting to know people, even though large groups are intimidating.

I stepped into the crowd and asked a random person about the potluck. She said she didn’t know anything about it, but she pointed and said I could probably ask that bald guy over there. I didn’t see where she had pointed, so I approached the first bald guy I saw. That was Reilly.

We stood in the middle of that cul-de-sac, and I tuned everybody else out to focus on our conversation. I found out that we were both English majors. He graduated from the University of Utah, and I would be graduating that following April from BYU. We chatted about books and movies and music, and I was excited to talk with someone with whom I have so much in common.

Needless to say, Reilly Ryan thwarted my Sunday plans. During our chat, going to the potluck was the furthest thing from my mind. But it couldn’t have ended better.

We got married June 1, 2012. Our daughter Z was born in April 2014, when we were both in the middle of grad school. Our life together has been a marvelous journey so far.

Part of that journey includes speaking to you in church today. Time will tell if this experience ends up being marvelous or not. I’ll try to be optimistic.

In our remarks, Reilly and I will address the question, How will faith and obedience fortify me in today’s world? We will draw upon a talk by Elder L. Whitney Clayton from this past April’s General Conference called, “Whatsoever He Saith unto You, Do It.” This is a wonderful talk that has helped me focus my thoughts, and I pray that the Spirit will guide my words in their meaning and message.

Elder Clayton begins his talk with the story of the wedding at Cana in John chapter 2. Verses 1-11 read:

1 And the third day there was a marriage in Cana of Galilee; and the mother of Jesus was there:

2 And both Jesus was called, and his disciples, to the marriage.

3 And when they wanted wine, the mother of Jesus saith unto him, They have no wine.

4 Jesus saith unto her, Woman, what have I to do with thee? mine hour is not yet come.

5 His mother saith unto the servants, Whatsoever he saith unto you, do it.

6 And there were set there six waterpots of stone, after the manner of the purifying of the Jews, containing two or three firkins apiece.

7 Jesus saith unto them, Fill the waterpots with water. And they filled them up to the brim.

8 And he saith unto them, Draw out now, and bear unto the governor of the feast. And they bare it.

9 When the ruler of the feast had tasted the water that was made wine, and knew not whence it was: (but the servants which drew the water knew;) the governor of the feast called the bridegroom,

10 And saith unto him, Every man at the beginning doth set forth good wine; and when men have well drunk, then that which is worse: but thou hast kept the good wine until now.

11 This beginning of miracles did Jesus in Cana of Galilee, and manifested forth his glory; and his disciples believed on him.

Elder Clayton points out that we recognize this story because it demonstrates Jesus’ power early on. It’s his first miracle. But as in most scripture stories, there can be multiple layers and lessons, and in this story, the lesson we focus on here regarding faith and obedience is in Mary’s instructions to the servants: “Whatsoever he saith unto you, do it.”

Mary’s confidence reminds us of who she is and how she came to give such straightforward direction. Mary is the mother of Jesus. As many parents with their children, Mary knows her son more than anyone. She knows his quirks, his tendencies. She knows that he is sinless, he is perfect. The Joseph Smith Translation of Matthew 25:3 states, “he spake not as other men, neither could he be taught; for he needed not that any man should teach him.”

When Mary says to the servants, “Whatsoever he saith unto you, do it,” she’s saying she knows of the Savior’s divinity, his ability to save our souls. She’s saying that He is someone, the only one, we should have faith in.

How will faith and obedience fortify me in today’s world? The fourth Article of Faith says the first principle of the gospel is faith IN THE LORD JESUS CHRIST. Not just general faith. Faith in anything else will not sufficiently equip me to handle today’s seemingly numerous and relentless trials.

What is it about today’s world that makes life so difficult? What present challenges make faith and obedience especially crucial? We have many examples in the Bible and Book of Mormon of people struggling and exercising faith during those earlier dispensations. We have stories from early church history of saints facing different difficulties. We can gain inspiration from reading about all of these experiences. We can liken the principles taught to our lives. We know that we live in a unique time, and since the topic specifies today’s world, I have reflected on the years I have lived on the earth and some of the particular temptations that have tested my faith and obedience.

In the 80s, my dad introduced my mom to the church, and she was baptized when I was 6, and I got baptized when I was 8. I lived most of my childhood during the 80s in Florida, where I had a fascination with fire, and I remember taking books of matches from my house to the nearby playground and gathering kindling to start fires to watch them burn. These were always small fires that I extinguished pretty quickly, and this phase didn’t last very long. I’m not sure, but that was probably because I got caught and got in trouble. I conveniently don’t remember.

In the ’80s also emerged of MTV, which was really enticing with the adding of often spiritually toxic videos to already bad lyrics and a good beat and catchy melody. Media of all types had started to sneak their way into my mind.

The ’90s immersed my teenage and early adulthood years with increased intensity of what I was exposed to in the 80s. More tv, more music, more movies. Peer pressure invading my mind, I learned things I would have never seen or heard about in my home or from my family.

For the most part, I was a very faithful and obedient child and teenager. My parents and church family taught and supported me well. My friends were good and decent and wholesome people. I was a good student, graduating 2nd in my high school class, and I was accepted to BYU. I went to mutual. I went to early morning seminary. I earned my YW in Excellence Award. I kept going to church when my parents went inactive for a time.

It’s so weird to look back at the ‘80s and ‘90s and say these were simpler times, but the 2000s brought the seriousness of adulthood to my life. I didn’t know what I wanted to do in college, much less as a career, so I took a detour and moved with friends to New York City. I spent almost 7 years there. The entire world in all its aspects unfolded itself to me in that one place. The accumulation and amplification of every temptation I had been exposed to growing up and more was there. Furthermore in the 2000s was the full unleashing of the internet and the myriad potential ways it could derail someone like me from living the gospel.

There were bad influences in NYC, but I remember most fondly all the goodness it offered, too. I made some of my best friends there. The church is strong there. Members there struggle and fight, probably a lot like members everywhere do. There were times I wavered in my faith, but I always knew the gospel was true, and that my life had purpose. After trying to attend a singles ward for several months, I decided my time would be better served and I would feel more comfortable in a family ward. I served in the nursery. I served as a ward missionary. I also taught early morning seminary for two years. When I was there, serving others kept me on the right path.

And so we come to this decade. We could probably discuss and make a list of ways the world has changed in the last 7-10 years. Elder Clayton, in his talk, tells a story of speaking to a young bishop that spent several hours a week counseling members of his ward. He said, “The problems that members of his ward faced … were those faced by Church members everywhere—issues such as how to establish a happy marriage; struggles with balancing work, family, and Church duties; challenges with the Word of Wisdom, with employment, or with pornography; or trouble gaining peace about a Church policy or historical question they didn’t understand.”

This bishop often advised his ward members to “get back to simple practices of faith, such as studying the Book of Mormon, paying tithing, and serving in the Church with devotion.” He said, “Frequently, however, the members’ response to their bishop was one of skepticism: They said, ‘I don’t agree with you, Bishop. We all know those are good things to do. We talk about those things all the time in the Church. But I’m not sure you’re understanding me. What does doing any of those things have to do with the issues I’m facing?’”

That could have been me a number of times in the last 10 years talking to that bishop. I have questions and issues that I wrestle with. Most of the time they are about people I love and their relationship with the Church. My spirituality ebbs and flows, and when I am in the lower moments, it can be hard to know or remember what to do.

Elder Clayton says faith and obedience go hand in hand, that obedience is an act of faith. He says that those who obey in “seemingly little ways are blessed with faith and strength that go far beyond the actual acts of obedience themselves and, in fact, may seem totally unrelated to them. It may seem hard to draw a connection between the basic daily acts of obedience and solutions to the big, complicated problems we face. But they are related.”

Obedience is an act of faith in Christ, and the more we obey, the more we are blessed with faith. The more faith we have, the stronger we are to obey, even in the face of today’s barrage of mega-challenges. Christ can do that for us. He can fortify us. He can save us.

Reflecting upon the story of the wedding of Cana, perhaps the answer to the question, How will faith and obedience fortify me in today’s world? is another question: How do I come to know Christ the way Mary does? To answer that question, I wish I had something deeper than the little things, the “primary answers,” but it’s the little things that are truly profound and lead to growth. They set the foundation for progressing toward keeping higher covenants. Being diligent in my obedience as a child prepared me for many difficulties I faced growing up. Being faithful and obedient now motivate me to keep going to church, remind me to count my blessings, and reassure me the Lord knows my concerns and will provide the answers I need in his time.

“Whatsoever he saith, do it.” To apply that bishop’s counsel of studying the Book of Mormon, paying tithing, and serving in the Church with devotion is a lot like pouring water in those stone vessels, not really understanding how that will result in the best wine. That’s where I am right now. If I do these things, I don’t understand how that will resolve my personal struggles. But I do know that these acts of obedience are an exercise of faith in my Savior. These acts will enable me to know him better.

And I believe that the better I know Jesus Christ, the stronger my desire will be to obey his teachings. This is what I was taught as a child; and because we are uncertain and nervous about the world our daughter will grow up in, this is what Reilly and I will continue to teach our family. No matter our struggles, if we can establish little habits of faith, if we can fill the pots with water to the brim, the Lord will somehow touch our lives, perform a true miracle and fortify our souls, and bring out the best in us.

A Quasi Rant and an Update on Z

In the past months since the last blog post, a couple of experiences have lingered in my memory. These remind me just how different human beings are, and in terms of behavior among “normal” individuals, there is also a broad spectrum to navigate. And how we respond to these people reveals more about ourselves than they.

The first experience comes secondhand. Reilly came home one day the middle of last month and recounted he and Z had taken Sia to the vet for her booster shots. They were in the waiting room, and Z was spinning in place and jabbering happily. An older woman was watching her and asking her questions, and Z wasn’t answering, because as a 3-year-old, spinning and jabbering are far more important. But Z did stop spinning, and the lady asked her a question. Z answered with more jabbering, which made the lady turn to Reilly and ask if she knows real words. She wasn’t mean about it, and Reilly explained that Z has autism and delayed speech. The lady then replied that her daughter is a special education teacher in an elementary school and asked Reilly if he knew her. Z attends pre-school in a different district, so it’s not likely that we would have run into this lady’s daughter. Nevertheless, this was a short, but cordial conversation, and I was glad to hear how accepting the lady seemed of Z’s circumstances.

The second situation happened about a month ago. I was observing a group being talked to by an important person in a certain industry. He was telling the group how essential they were to the overall vision, that he was pleased with how their colleagues in other offices were looking to adopt this group’s production model. He told the group that they were special, “not special ed, but special.” Some of the people in this group laughed. I did not. I was disappointed that a person that people respected would make a joke like this. I don’t know if I was particularly sensitive because of my new closeness to the special needs world, but I also wondered why people are still making fun of others who happen to be different.

Yeah, broad spectrum. I’m generally accepting of most decent and well-intentioned people. And sometimes I say things that may be insensitive to others’ circumstances. And yes, I do want to protect our daughter, but I know she’ll have to face the world to live her own life. And if I struggle reading people at times, I just wonder where on the autism spectrum is Z’s ability to discern emotions in other people. How much will we be able to teach her, to prepare her to handle interactions with complete cussheads?

On a sort of similar note, Z has been through two weeks so far of ABA sessions with a tutor. The interventionist (the tutor’s supervisor) says Z’s learning really fast and likes to push her with different challenges. Z now has a little toolbox of word approximations, so that when we ask her, “What do you want?” she can say, “dee” (candy), “boo-boo” (bubbles), “chih” (chips), “chee” (cheese), “kha” (drink), “koo-eeh” (cookie), “doh” (donut), “side” (outside), a maybe a few other little words. You can tell that food is a major motivator for her. She’s become a better imitator, she waves and says, “bye-bye-bye-bye-bye,” and she can say “mama” and “da-yee” when prompted.

This is so exciting and reassuring. Our little communicator. We love her.